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My life, in bullets - Karen's Musings
Random Rambling
My life, in bullets

There are so many days where I have things to blog about, and yet there's no time. Ever. When I finally have the time, I'm exhausted. Who am I kidding? I'm exhausted even when I don't have the time. Nevertheless, life is passing by and I've failed to record any of our comings and goings milestones, successes, failures, joys or frustrations. So here are a few of the highlights...

  • Because this is us, and because not enough things have gone wrong this year, our washing machine broke. This may seem a minor inconvenience, but consider the amount of laundry that a family with five young children creates. We do laundry multiple times every day in our house, and if we don't, the piles take over. We have great friends and neighbors who generously allowed us unfettered access to their laundry facilities, but it still adds complications to our already complicated lives. I'm happy to say that we now have a new washing machine. I'm less happy to say that it's already broken (might have been defective from the start). We've got someone coming out to look at it tomorrow.
  • A first of firsts: Tobie got her first tooth this past weekend. This is the first time I've been the one to discover one of my chidrens' first teeth. I know it's something small but it makes me feel unbelievably happy to have been the first to discover this milestone. As a busy, working mom, it's all too easy for milestones to slip by without immediate notice.
  • My health is not significantly improved since last I wrote about it - it's just gotten to be boring to write about. I had botox injections inside my stomach (around my pyloris). While my pyloris as never looked younger, I still have crow's feet and still have difficulty eating solid food. Still, it wasn't without at least a small amount of success. I'm in less pain, and can now keep small amounts of solid food down. It was very little trouble and did help a little bit, so it was definitely worth trying. I have an appointment at Johns Hopkins in January, so hopefully they'll have better answers for me. As far as I know, I have exhausted my non-surgical options, so now it's a matter of finding a doctor who can do the surgery that I need (there are a limited number of hospitals in the country who do gastric neurostimulator surgery). We'll see where this goes.
  • We had Sam evaluated by our developmental pediatrician. This is the same dev. ped. who evaluated and treats J for his ADHD, anxiety, etc. J's evaluation report 3 1/2 years ago was a page and a half. Sam's report was nine pages long. There's some possibility that Sam's on the autism spectrum. On paper, he looks very autistic, but in person, he's far too socially engaged to strongly support that diagnosis. He does, however, have a whole host of other issues. He's probably got OCD (he's a little too young to diagnose with OCD, so normally at this age, his behaviours would be attributed to ASD instead. This is where it all gets fuzzy). He's got ADHD inattentive type (no shock there). Cognitive delays, speech/language delays, anxiety, and more. He's a complex kid, to say the least. The best thing I can say about the whole thing is that at least we have a great team working on his side.
  • We had a gaggle of people over for Thanksgiving, including J's mom and grandparents, our mothers, my BIL, and more. A fascinating cast of characters, to be sure. It was a stressful day, but everyone seemed to enjoy themselves, and I put out a delicious spread of food, if I do say so myself.
  • Tobie still doesn't sleep through the night. This is partly because she's been sick for the better part of a month, but also just that she's not there yet. This means that I am perpetually tired - I cannot wait to get a whole night's sleep again.
  • I have more to say, but I've fallen asleep at the keyboard two or three times already, so I'll have to catch up more later.

11 comments or Leave a comment
cleobatya From: cleobatya Date: December 2nd, 2010 10:16 pm (UTC) (Link)
I'm glad the botox worked a little, and sorry to hear about the rest of your yuks. However, you still amaze me because even when you are falling apart, you manage to pull it off. Can you believe you have 5 children?!
estherchaya From: estherchaya Date: December 3rd, 2010 04:10 pm (UTC) (Link)
I wake up every day in shock that I have five children. ;)
netiimvzaviyos From: netiimvzaviyos Date: December 3rd, 2010 12:44 am (UTC) (Link)
Sam does have a great team on his side -- not just the dev ped but also you and Seth.

Thinking of you.
estherchaya From: estherchaya Date: December 3rd, 2010 04:10 pm (UTC) (Link)
Thank you.
hannahsarah From: hannahsarah Date: December 3rd, 2010 09:49 am (UTC) (Link)
Yay for finding at least some relief. I hope they can figure out the least invasive way of getting those nerves to quit freaking out.

Have you read The Out of Sync Child? It is such an amazing book, it's like someone has been following Rivka around her whole life, taking notes, and then they just handed me a report on her. Of course there's stuff in there about other kids with different issues, but the stuff about her is so completely dead-on accurate it's almost creepy.

She starts her evaluations tomorrow morning, thank G-d. We're suspecting ADHD, SPD and possibly Aspergers or somewhere along the spectrum. Her teachers are behind me 100%, so I'm hoping that we can come up with some plans to make her life more workable.
estherchaya From: estherchaya Date: December 3rd, 2010 04:11 pm (UTC) (Link)
I have read the Out of Sync Child (see also: The Out of Sync Child has Fun). It was far more helpful with Julian than with Sam.

Good luck with the evaluations.
hannahsarah From: hannahsarah Date: December 3rd, 2010 04:21 pm (UTC) (Link)
Good luck with Sam, too. As I've said about Julian, he has the best possible parents, and that's 99% of the battle. :-)
mrn613 From: mrn613 Date: December 3rd, 2010 01:28 pm (UTC) (Link)
I'm sorry that you are still so ill and hope JHU can bring you a refuah shleima. Are your GI problems caused by your hyperemesis, or were they the cause of the hyperemesis? Anyway I am glad to hear you are at peace with J's birthmother and I know you have a fantastic dev. ped. so S. is in good hands.
estherchaya From: estherchaya Date: December 3rd, 2010 02:29 pm (UTC) (Link)
I would not say that I'm at peace with J's mom. Resigned to it, sure, but at peace? Probably never. But it's important to me to ensure that when this is all said and done, NO ONE will be able to look back and truthfully say that I wasn't *always* appropriate, open, and willing to do the right thing.

re: the GI stuff - there's a chicken egg thing here. We don't know if I had gastroparesis and didn't realize it which resulted in horrendous hyperemesis or if the gastroparesis was caused by the severe hyperemesis. Either way, the treatment's the same, so it will likely remain a mystery.
arosoff From: arosoff Date: December 3rd, 2010 11:48 pm (UTC) (Link)
I'm so glad to hear from you--well, I have on Facebook, but it's not quite the same! So sorry things aren't better healthwise. I hope things with J's mom are going as well as they can.
From: (Anonymous) Date: January 17th, 2011 08:53 am (UTC) (Link)

painter 11

Excellent article, a great deal of valuable information.
11 comments or Leave a comment