?

Log in

No account? Create an account
entries friends calendar profile Previous Previous Next Next
How Our Phone Conversations Go These Days - Karen's Musings
Random Rambling
estherchaya
estherchaya
How Our Phone Conversations Go These Days

Seth went to give platelets early this morning. While he was gone, I got J's daily medication taken care of, got the babies out of their cribs, changed them, and made everybody pancakes. All four kids were eating their pancakes when Seth called to say he was on his way home. Our conversation went something like this:

Seth: Good news! I'm on my way home.
Me: Great! Happy Father's Day! I've got pancake waiting for you - J! Do not drink off the chair! Turn around, sit properly, and drink appropriately! Sorry, honey. So, um, I'll see you soon?
Seth: Yeah, I'm leaving [city] now, so I'll be home shortly. Anything you need me to do on the way home?
Me: No, there are some things we need to pick - Sam! Don't throw your plate on the floor! Ugh. Of course, right after he threw his plate on the floor, he did his little mumbly-giggly thing and proceded to eat the pancake he still had in his hands. Um, right. So there are some things we need to pick up for the nanny for the week, but we can get them later.
Seth: Okay, I'll just come home then.
Me: That would be good. This hasn't been a great morning, what with whiny boy and all. He got mad at me for giving him strawberries with his pancakes. Ellie, SIT DOWN! Sorry honey. How'd things go this morning?
Seth: Fine. It was pretty uneventful actually -
Me: Get the strawberry out of your nose!
Seth: [laughing]
Me: Sam! No pancakes in your hair! I am not washing your hair today!
Seth: [still laughing]
Me: Yes, very funny.
Seth: It is!
Me: I am so blogging this.
Seth: You should!
Me: Yes, Ellie, that's Ellie's nose. Good job, Abby, that's Abby's nose! What's your ETA?
Seth: About 15-20 minutes. I'll be home soon. Did you remember to change J's weekly patch?
Me: No, I didn't have any whole ones upstairs, but I'll do it when I go downstairs again. Abby, do you need a new diaper? Yuck! Hasn't mommy changed enough diapers today?
Seth: Sorry, sweetie.
Me: It's okay. I'll see you soon. Wanna say hi to Abby?

And on and on...

Tags:

16 comments or Leave a comment
Comments
kalki From: kalki Date: June 21st, 2009 06:28 pm (UTC) (Link)
I totally see this in my future :)
estherchaya From: estherchaya Date: June 22nd, 2009 12:48 pm (UTC) (Link)
definitely.
yeishlitikvah From: yeishlitikvah Date: June 22nd, 2009 12:01 am (UTC) (Link)
what blessings. it's nice to see a happy update of healthy babies eating and exploring the wonders of their food.
estherchaya From: estherchaya Date: June 22nd, 2009 12:48 pm (UTC) (Link)
my kids pretty much rock.
journeytoernie From: journeytoernie Date: June 22nd, 2009 11:41 am (UTC) (Link)
ha! that's like a long version of what my house sounds like ;)

what patch is julian on? a weekly one?? that sounds very convenient!
estherchaya From: estherchaya Date: June 22nd, 2009 12:34 pm (UTC) (Link)
Julian's on two patches - a daily one (Daytrana), which is a stimulant patch, and a weekly one (Clonidine) - which is not a stimulant which is usually not given in patch form and is not generally used as a standalone ADHD medicine, but rather as a complimentary medicine to a stimulant. It doesn't work well as a standalone medicine. For children it is rarely given in patch form for ADHD, as far as I understand it. Julian is the exception.
journeytoernie From: journeytoernie Date: June 22nd, 2009 02:09 pm (UTC) (Link)
wow! i'm gald it's working though! and what a relief to have something easy like a patch.

how do you deal with taking it off though? levi would SCREEEAAAM when it was time to take his off. and you put it in a different place each day. i found that made the meds change consistency bc of the fat under the skin.

it's always an exception though isn't it? ;)
estherchaya From: estherchaya Date: June 22nd, 2009 04:09 pm (UTC) (Link)
It is not working particularly well. But he will not take oral medications under any circumstances.

The fat under the skin shouldn't change the consistency of the patch. The thickness of the skin itself (back vs. buttock) might change absorption rate, though. Julian's Daytrana patch only goes on his back, b/c it itches him too much on his buttock.

As for taking it off - Julian is older than Levi, so he doesn't love it, but he is probably more tolerant than Levi. Also taking off in or after a bath helps.

The Clonidine patch is tiny and goes on his arm. It has a different kind of adhesive, so it doesn't hurt to pull off (plus it only comes off once a week.

Neither is doing enough to control his ADHD, and we're about to have to find a way to get an oral medication into him for anxiety, so the fun is about to begin anew. [/sarcasm]
journeytoernie From: journeytoernie Date: June 22nd, 2009 04:19 pm (UTC) (Link)
our doctor said that the fat level under the butt and back and arm are all different. therefore it goes into the body different rates nad makes it hard.

that is true. it is weird that he'll consent to getting a patch pulled off but not to oral meds! my guys dont get bathed daily. dry skin.

does the clonidine fall off then? it seems like they should share adhesive secrets with the rest of the world :)

that's frustrating. i hate the medication shuffle :( i'm incredibly lucky that my guys take meds no prob. asher can swallow a pill without water. we call him storm drain :) he's on zoloft for anxiety and it's been helping. not a ton, but enough that he is happier. levi takes his "special sprinkles" on yogurt but asher is trying to teach him to swallow a pill

speaking of asher. we got an official pre-diagnosis (she wants another person to fill out the questionaire before officially diagnosing since the diagnoses are hard to get rid of if incorrect). the doctor (and both of us) think asher has aspergers. so now the real fun begins!
estherchaya From: estherchaya Date: June 22nd, 2009 04:29 pm (UTC) (Link)
it's a sensory thing. Taste, texture, etc. It's also a control thing. The patch is usually half coming off by the time we get it off anyway. The clonidine patch does not fall off by itself, but it doesn't have to come off very often, so that's a bonus, plus it comes off pretty easily, plus it's very small, so there's very little surface area to worry about.

We shuffle J's medication every couple of weeks. It's ridiculous.

We're starting Prozac starting tomorrow for the anxiety. He doesn't know it yet. It's going to suck. I give him 10 days before he refuses to take it. If that long.

Good luck with the aspergers - it's a spectrum, so there could be a range of needs that he'll have from very simple to more in depth.

journeytoernie From: journeytoernie Date: June 23rd, 2009 12:59 am (UTC) (Link)
that has to be very frustrating. i dont know if i could handle that.

does prozac come with "sprinkles" or a pill? and is there a way to make it a syrup? will he take that?

yeah i know about aspergers. i've read up on it hard core. i wish there was a medicine i could give him that'd help as much as levi's meds helped him
estherchaya From: estherchaya Date: June 23rd, 2009 01:06 am (UTC) (Link)
it is beyond frustrating.

Prozac comes as a liquid suspension or in a pill. We have the liquid that we'll start tomorrow, but it tastes disgusting, so I don't have a lot of confidence that we'll be able to adequately disguise it. He only has to start with 0.2mls of it, but even so, he's got a ridiculously sensitive palate. Lucky me.

He specifically will not take anything that is "sprinkles" or "beads". Which is a pain in the tushy, because it means no extended release medications.

No magic solutions for aspergers, that's right.
journeytoernie From: journeytoernie Date: June 23rd, 2009 01:25 am (UTC) (Link)
what a joke! they cant add flavoring or anything!? you're just outta luck completely?? you have my sympathy. does he rationalize with you? "i know you dont like it, but this WILL make you feel better soon" ?

so how do you get him to take a pill then?

i will say that asher's camp has helped a lot already with the aspergers.
estherchaya From: estherchaya Date: June 23rd, 2009 01:51 am (UTC) (Link)
It has a sort of mint flavor (he hates mint) - but it's got a very bitter after-taste.

Rationalizing with him doesn't work.

He won't swallow pills. I have to crush them and mix them into things. And that doesn't really work all that well.

Glad the camp is helping.
From: atimesif Date: June 30th, 2009 11:24 pm (UTC) (Link)

meds

Do any of these meds come as suppositories?
estherchaya From: estherchaya Date: June 30th, 2009 11:58 pm (UTC) (Link)

Re: meds

No.

And even if they did - he would fight that tooth and nail. I still remember trying to give him Tylenol suppositories as a one year old and getting kicked in the teeth. As much stronger, bigger almost-6 year old, I can't imagine what he'd do to me.

I should add that, thus far, he has been willing to take the Prozac liquid mixed into Coca Cola. I don't expect this to last forever, but it's working for the moment, so I'll take it.

Edited at 2009-06-30 11:59 pm (UTC)
16 comments or Leave a comment